I Was Born That Way!

Cole's 5th B'Day 081
Cole and I on his 5th B’day 2007.

Just about at the time that this photo was taken of me and Cole back in 2006 is when I went to see a cardiologist about my blood pressure. During an FAA physical in the spring of 2006 it was noted by that FAA doctor that my blood pressure had begun to creep ever so slightly upward, and that this doctor had heard a murmur while listening to my heart. He advised me to go to my primary doctor and get it checked out. This also coincided with me leaving Denver and moving back to my hometown of Fresno, CA.

Once that I got moved in and established back in Fresno I sought out a cardiologist, Dr. John Nelson, who had saved my brother’s life after having a massive heart attack a few years previous to this time. So once I got into to see Dr. Nelson he began to delved into why my BP (blood pressure) was creeping up, and what was the origins of my murmur.

Through the Summer and into the Fall of 2006 my doctor set me up for several tests, one of which he wanted me to do was and angiogram. I immediately squashed that idea because I did not want that on my medical record to go with high blood pressure and I was also diagnosed as a borderline diabetic. My health appeared to be taking a tumble and I didn’t want the FAA to ground me because of these early heath warnings.

So Dr. Nelson began his best impression of Monty Hall! We bantered back and forth trying to make a deal about different types of tests he thought would be beneficial in nailing down my particular issues. After much discussion he asked me if I would agree to do a 64 Slice. He said that at that time it was a very cutting edge test. Unfortunately, he informed me that more than likely my insurance would not pay for it. I asked him what it entailed? With a name like 64 Slice it sure sounded very invasive to me and my guard was already way up!

He informed me that it was a type a CAT scan, and he thought that it may help in nailing down the origins of my heart murmur. It would enable him to see my heart with a much higher resolution. He said to be me, “if I can get you in for free will you do it”? “You will have to go to San Francisco to get this done”. Long story short, within a couple of weeks I was driving up to SF to have my 64 Slice!

After reviewing the results of the 64 Slice, Dr. Nelson noted that there appears to be an issue with my aortic valve and he had just one more suggestion. He wanted me to submit to a TEE. I asked him what the heck was a TEE? He informed me that it was a trans esophageal echogram. There was an idea that my aortic valve was bicuspid, two leaflets, versus the normal tricuspid or three leaflets. I was informed that the aortic valve lies right next to the esophagus and they (the doctors) can have a real good look to see if my aortic valve was bicuspid or not from the TEE.

After accomplishing the TEE is was proven that I have an abnormal aortic valve, bicuspid. It was something that I was born with, but took 55 years for it to rear its ugly head! At that time Dr. Nelson informed me that, in time, I would have to have my aortic valve replaced. So it was decided that my cardiologist was going to keep a close watch on my bicuspid aortic valve.

For the next four years everything seemed to remained status quo. My aortic valve regurgitation, aka murmur, remained in check and did not grow any more severe. My heart appeared to be operating perfectly normal, with that one exception of a murmur.

However, on the evening of May 16, 2010 there was an event that was going to change everything!

For those not family or close friends, and are not familiar to what happened that night, you must read the above link to understand what a traumatic event can have on your heart!

Stay tuned for Part 2!

TIL NEXT TIME, KEEP THE SHINY SIDE UP!

I Have A Broken Heart, No Really!

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It was the best of times, and it was the worst of times! Isn’t that how The Tale of Two Cities begins? Well it is very apropos in my tale as well.

It was the Spring of 2006, I was 55 years old, when my life took a hard left turn, quite unexpectedly. I was taking my bi-annual FAA physical when the doctor was listening to my heart and suddenly looked up at me and asked me a question, that appeared quite out of the blue!

The doctor asked me “how long have you had this heart murmur?” I was completely stunned by his question. My eloquent retort to the doctor went something like this. “What murmur, I don’t have no stinkin’ murmur”!

The doctor then sat down beside me and explained what a heart murmur was and that, yes indeed, you do have a heart murmur. He then explained to me what to listen for through his stethoscope as he positioned that on my ears and over my heart.

I heard just exactly what he had heard! I did in fact have a murmur at 55 years old. How could that be? How could this just now show up? I have physicals yearly for twenty years, and for the last ten years a physical every six months.

In addition to the heart murmur, the doctor had detected that my blood pressure was creeping up. He suggested that I see my doctor regarding all this news. I was getting ready to move back to my hometown, Fresno, in just a few weeks so I thought that once I was all moved in I would contact a cardiologist. I decided I would make an appointment with the cardiologist that saved my older brother’s life a decade previous.

I was caught completely off guard. My first 55 years had been a cake walk.

Now, all of the sudden, “Houston we have a problem!”

After getting into to see Dr. John Nelson, he began to prescribe some medication that he thought would get my blood pressure down. Then he got down to brass tacks to try to find what the cause of my heart murmur to be. After an echocardiogram the doctor was beginning to get a feel for the culprit. Dr Nelson told me that the echo seems to point to a bicuspid aortic valve as the problem, but it wasn’t conclusive. He wanted for me to have and angiogram and that would help to flush out the answer. I had heard about that procedure and that you are awake when it is performed. My answer was “no Happy Valley, no angiogram!”

He didn’t like my response. So he sat back down and mulled over another plan. He asked me would I be interested in getting a 64-Slice? After he explained that it was non intrusive and that it was, in effect, a very strong xray, a Cat Scan type of procedure. At that time it was very leading edge. He would like to get me into this new test program in San Francisco that was cutting edge at the time and give him a better look at my aortic valve via that scan. He was pretty sure that my insurance would not cover the expense, but that he could get me enrolled for free,

I agreed that if it wasn’t going to cost me a thing, and that there was no adverse conditions or pain, I would do it.

It took several weeks to get my schedule and the facility’s schedule worked out. But, we made it work and soon I was off to downtown San Francisco for my 64-Slice.

It was a very simple, interesting, and basically a non-invasive procedure. It was like an enhanced x-ray with contrast. That was a very important piece of the puzzle to gather in order to make the proper diagnosis for me.

Having gathered the info from the 64-Slice, there was just one more test or piece of evidence required to nail down the reason for the murmur. Dr. Nelson suggested that I have a TEE (Transesophageal echocardiogram). I agreed to have that procedure at the hospital with Dr. Sandhu (you may hear more about this doctor later in this series, he was a trip)! I found out that the aortic valve lies right next to your esophagus, and this procedure allows a very up close and personal look at the aortic valve.

In a few days following the TEE Dr. Nelson concluded that I have a bicuspid aortic valve (two folds or flaps), normally the aortic valve is tricuspid or three fold or flaps. My bicuspid aortic valve is genetic. As Lady Gaga sang, “I was Born That Way”! It is genetic, in that, I received this from either my mom’s genes or my dad’s genes!

The results of the TEE gave Dr. Nelson the vital piece of knowledge to fully understand and diagnose what was to come down the road!

Now realize that this all happened in the time frame of late 2006 and the Spring of 2007.

What lies ahead for me will be eye opening and life changing!

This post will the first part of a several part series that I am in the process of writing to bring you up to date as to what is currently happening to me……… open heart surgery in the next six weeks.

TIL NEXT TIME, ROGER, WILCO, OVER AND OUT!